Somehow, i have made it through. My kids are now 2,5,7 and 9.
2,4,6 and 8 was much more fun to say.
I kind of feel like we faked our way through toby's party as i am completely exhausted and keeping up the exuberance for a whole month of birthdays is exhausting.
But because toby is toby his party was the funnest of all. We had a boot camp party for him. All the kids dressed up in camo and we ran them through an obstacle course, some laps of the house and a couple games of capture the flag. Shane and i got to wear whistles and yell at them.
What could be better?
Toby occupies a large space in my heart and my worries. He's such an amazing little guy. Friends to everyone. He wanted to invite every boy in the school to his party and i'm sure they all would have gladly come. I had to limit him to the boys from three classes. His teacher often tells me she adores him and that she goes home every evening and her husband asks her what her "toby story of the day" is.
He has this disability which in the grand scheme of things is very minor. He is healthy, he is happy. It's just that speech is such a fundamental thing. It's how we communicate. I almost wish he couldn't talk at all because then we could say "he doesn't talk" when people question us. Instead people look at him like he's something "less." Kids tease him. He is often frustrated by people not understanding, or worse, pretending that they do by nodding their head "yes."
I just worry. I want the world to know him like i do. I want the world to experience all the little things that make toby, toby. I just love him.
Posted by Jess at 05:51 PM Permalink
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you're such an amazing mom, and what a great kid you have.
you are making a better world for him every day, and people will know how special and wonderful toby really is. you are making such a difference in our lives just writing these lines, never forget that.
Posted by Irene | June 19, 2006 12:00 AM